Advanced specialization Course- Narrative, Bioethics, and Integrity in Scientific Research

Recommended Prerequisites

Not applicable.

Teaching Methods

After the introduction and debate of basic concepts, the course will focus on the analysis of case studies, obtained from real situations, works of fiction or autobiographical texts of various types of stakeholders (scientists at various stages of their careers, patients, caregivers, witnesses). Part of this material should be studied independently, and then discussed collectively.

The model in B-Learning will allow the use of training modules available online, as well as the remote participation of national and international and international invited teachers.

After performing several types of short exercises, the final evaluation will be based on a synthesis work (100%), freely chosen from among the themes of the course, and validated in advance.

Learning Outcomes

With this course it is intended that students acquire basic notions of bioethics applied to integrity in scientific research, relevant to activity in the fields of natural and health sciences. It is also intended to introduce the narrative as a tool for humanization, reflection and analysis, which allows evaluating, using examples, both the action of researchers and their relationship with peers, students or subjects involved in a given study (such as local inhabitants, patients or caregivers).

Work Placement(s)

No

Syllabus

Scientific Research: Problems, Models, Methodologies, Procedures, Biases, Careers. Rights and Duties of Researchers at different stages of their careers. From the real to the ideal.

Principles of Bioethics Applied to Scientific Research. Historical perspective, schools of thought, and application to daily practice.

The Importance of an Institutional Framework: Animal Welfare (ORBEAs), Ethics Commissions, Data Protection. The European Code of Conduct for Research Integrity. Examples of good and bad practices. Discussion of specific cases specifying the different types of problems that may arise during an investigation.

The Importance of Narrative in the framework of Scientific Research. Concepts of Science-in-Fiction and Narrative Medicine. The humanization of Research and the importance of the experiences of different actors in the development of sustained and responsible research. Narrative Medicine as an element of Precision Medicine.

Head Lecturer(s)

João Ramalho de Sousa Santos

Assessment Methods

Assessment
The final evaluation will be based on a synthesis work (100%), freely chosen from among the themes of the course, and validated in advance: 100.0%

Bibliography

Arthur Frank (2013) The Wounded Storyteller: Body, Illness, and Ethics, Second Edition. The University of Chicago Press.

Helga Khuse (2015) Bioethics: An Anthology, 3^rd edition. John Wiley and Sons

Luis Adriano Oliveira. Ética em Investigação Científica (2013). LIDEL.

Maria do Céu Patrão Neves e Maria da Graça Carvalho. Ética Aplicada Vol. XII: Investigação Científica (2018). Edições 70.

Rita Charon (2008) Narrative Medicine: Honoring the Stories of Illness (2008). Oxford University Press.

The European Code of Conduct for Research Integrity (Revised Edition) 2017. ALLEA - All European Academies, Berlin.