Continuing and Palliative Care in Children and Adolescents

Recommended Prerequisites

Not applicable.

Teaching Methods

Theoretical lectures. Discussion of clinical cases.

Presentation and discussion of an individual work.

Learning Outcomes

Promote personal and professional training and update in Pediatrics palliative care;

Contribute to the demystification of the concept of pediatric palliative care;

Contribute to a top-quality global assistance to patients and their families, with special emphasis on quality of life, including the mourning phase;

Enhance adhesion to care, even when cure is not possible;

Provide training in service dynamic organization;

Develop skills that allow for the presentation of strategies for a more suitable scheduling of assistance.

Work Placement(s)

No

Syllabus

Characteristics of Society: pediatric palliative care in Portugal: Reasons for the “golden” treatment of children.

The incongruity of dying in the beginning of life, Children mortality.

Difficulties Pediatric Palliative Care professionals face.

Types of Pediatric Palliative Care, Why oncology and palliative care.

The health professional and information to parents/children.

Children and the perception of death.

Quality of life and pediatric palliative care.

From pre-terminal phase to mourning.

Pediatric Palliative Care: Dimensions of the Caretaking Activity.

Pain and Symptom Control.

Communication and Spiritual Follow-up.

Teamwork and family-centered care.

Hospital care and home care for severely ill children.

Head Lecturer(s)

Marilia Assunção Rodrigues Ferreira Dourado

Assessment Methods

Assessment
Other: 100.0%

Bibliography

Direcção Geral da Saúde, Conselho Nacional de Oncologia. Programa Nacional de Cuidados

Paliativos. Lisboa: Direcção-Geral da Saúde; 2005.

Ward-Smith P, Linn J, Korphage R, Christenson K, Hutto C, Hubble C. Development of a

Pediatric Palliative Care Team. J Pediatr Health Care 2007; 21 (4): 245-49.

Johnston D, Nigel K, Friedman D, Meza J, Hurwitz K, Frieberg S. Availability and Use of

Palliative Care and End-of-Life Services for Pediatric Oncology Patients. J Clin Oncol 2008;

26 (28): 4646-50.

Beardsmore S, Fitzmaurice N. Palliative care in paediatric oncology. Eur J Cancer 2002 Sep;38(14):1900-7.

Dangel T. The Status of Pediatric Palliative Care in Europe. J Pain Symptom Manage 2002.

24 (2): 160-65.